Give Them Hell

Jim at the Advocacy Forum. April 2013.

Jim at the Advocacy Forum. April 2013.

To all my fellow advocates:

We will not be at the Alzheimer’s Association Advocacy Forum this year. It with great trepidation and sadness I tell you this, but I have complete faith that everyone else going, who will be there with their purple sashes on, will carry our torch high and will do a GREAT job.

Next Wednesday is Brad’s birthday. I am almost ashamed to say that I came this close to choosing the forum over being at home to help him celebrate turning 11. That is how strongly I feel about advocating for research funding. I talked to him. He told me it was “ok” I could go and he would understand. But the mother in me couldn’t do it. I love being there and seeing everyone and meeting new friends and advocates and feeling like I am making a difference, but when it came down to it; my son is my son and only turns 11 once and I can only do what I can do. There are many others who will be there to fight for our cause. Thank you for sacrificing, traveling and being there. Thank you for telling our representatives this is the most important battle we face for keeping our budget in check and for protecting our loved ones. Thank you for fighting for all of us.

Last year I had a friend ride her bike across country. I wrote about it here.   This is her first Advocacy Forum. Give her a hug, a high five and tell her “hi” for me.

Not to go completely without helping in some way, the kids, (hopefully Jim) and I will be traveling to Washington D.C. not long after the forum to meet with our representatives and remind them of what you all have asked for. So, you could say we are the “clean up crew”.

If you are reading this, and you will not be participating in the Advocacy Forum next week, please contact your Congressmen and women to let them know how important it is to support Alzheimer’s Disease research. Let them hear your voice and to know this is an important issue. YOU can make a difference. Please take the few minutes and be heard.  This is super important for all of us. For you. For your family and for your friends.

I am sorry we won’t be there, but I hope each of you will write to me to fill me in. Write and tell me how you felt and what you learned and who you met and tell me all about everything we are missing.

Then we will see you all again next year!

posted by Karen in Uncategorized and have Comments (3)

3 Responses to “Give Them Hell”

  1. Mary DD says:

    We will miss you and Jim but don’t worry we will carry the torch! Keep us in your prayers!

  2. Lee Ann says:

    So close! So close to finding a cure. Australians, researchers at Stanford, and a few other places are written up in a science magazine online. They have developed an ultrasound that removes the plaques and fibers of alzheimers. And in mice it worked at 75% cured. sheep studies next, and human trials begin in 2017! So close.

  3. Mary DD says:

    You both were missed at the Forum but Annette Carter and I carried on for Virginia along with many other wonderful people. Lots of Advocates this year… so many more than last year it seems. Good momentum and good meetings. We just keep chipping away at it— we are making a difference and we will see a world without Alzheimer’s. See the vision and take action! Happy Birthday to your son!

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